So the Cat is away – the cat being Nico! It’s been 1 week since Nico has been down in Gloucester at my In-laws; he’s gone down for a 2 week holiday. He’s very happy as he’s been getting very loved and spoilt everyday by his auntie Bini and his grandparents. My In-laws are ecstatic as they get to spend time with him; Anish and I also get a break – so everyone is happy.
Nico has been so busy; I get daily updates from my lovely In-laws and Bini. He goes to Cash and Carry nearly everyday, he’s been to see the ducks, the park, had his first trip on a bus, been shopping, been to a wedding in London, he’s been to a farm and seen lots of animals. He’s having a ball!!! We Face time him when he’s free ha-ha
Don’t get me wrong; we are missing him like crazy but we get to have a lie-in and go out for date nights.
During the time that Nico has been away, Anish and I have been out for several meals, we’ve been to the cinema to see the new Transformers film – which was really good, long but good! We’ve had a lovely night out in Leeds with my cousins – a fair bit of alcohol was also consumed. We have made a shopping trip to Ikea, managed to do a few things around the house and chilled out. :-)
After waiting 3 months for deliveries we finally managed to finish putting our study area together on our 3rd floor landing, so this is where I sit and write my Blog:
It was also my lovely hubby’s birthday today – Happy Birthday Handsome!!!! We had a chilled out day, we went out to look at some gadgets (his 2nd love – as Nico and I are his 1st!!), went out for lunch. We then came home and I went for a run. It’s only 5 weeks until my run and I’m feeling slightly nervous now.
Last week I managed to run 2 miles in 29 minutes, I was so happy and felt that I had really made an improvement as when I first started training, it would take me 1 hour to run 1 mile. But then you know that saying ‘1 step forward, 2 steps back’ – well that’s exactly what has happened. I’m struggling to do 2 miles again now. I don’t think the heat is helping. Heat use to really make me feel better; but now it just irritates and triggers my MS Symptoms off. My feet and ankles are really spasming and tingling, my left arm feels like I’ve had a whole load on injections and my face just spasms - I am so fatigued, and my eye is hurting due to my optical neuritis.
I know that I’ll be OK on the day of the race as I’ll have so much support from friends and family, I just don’t want to make myself any worse; I am just going to have to take it easy!!! Let’s just hope it’s not this warm on the day of the race!!
My lovely cousin Leana has told me that she’ll be volunteering on the day of the race which is really nice of her.
I’ll keep you all updated on my training as the weeks get closer to the big day!!
Now that Anish and I have had our fair share of eating out; we’ll be back to making some tasty food – or should I say Anish will be!!
When he does – I’ll post the photos and recipes up.
It has been a busy couple of weeks. Last weekend my lovely cousin Neil whom I consider as my little brother got married!! We had two weekends of celebrations. I saw lots of relatives that I haven’t seen for such a long time. It was nice but ever so tiring. I wore sarees on all the days but this time I had to wear kitten heels rather than my high 3-4 inch heels :-(
Ever since I’ve been diagnosed with MS – my days of high heels have gone!! Thankfully my hubby Anish loves me being 5ft 2!
I’m quite glad I wasn’t in my super high heels as Nico was running around everywhere like a hyper cheeky monkey!!!
I managed to take quite a few photos, the funniest one being a family selfie!!!
Le Tour de France
Today was the launch of le Tour de France in sunny Yorkshire. As this is unlikely to happen again, we decided to go and try spectate. By the time we got to Leeds City Centre, there were so many people there; me being short didn’t really help either lol. The atmosphere was great, the weather picked up and we had blue skies and Nico and Anish were happy – which meant I was happy :-)
We then stopped off for a lovely brunch and picked up some nice desserts from https://www.patisserie-valerie.co.uk/
We got home, Nico was napping- so I went for a run. This time I ran 1.7 miles – the furthest I’ve run at the moment. It might not sound far but to me it felt like an achievement. The only thing is my run in August is 3 miles!! I am determined that I will finish the race BUT it will have to be a mixture of walking and running. It’s quite scary how quickly my MS symptoms flare up when I run. Today my left arm and face were spasming so badly. My feet had extra heavy pins and needles – but it’s so worth it. The donations to my Just giving page are really motivating me as I cannot let down everyone that has sponsored me. I am currently just over £1700 now.
If you haven’t sponsored me yet and feel like you want to, please click on the following link: https://www.justgiving.com/niti-patel/
Whilst I was running, hubby started to prepare our lovely dinner.
He made really tasty ginger, garlic and chilli prawns; Spicy Sweet Potato and Roasted Veggies. It was delicious!!!
Since I’ve been diagnosed with MS my life has changed so much. The sad thing is I’ve had friends who are now out of my life- I guess they could never have been true friends? Sometimes things are just meant to happen for a reason?
On the brighter side – I have been back in touch with friends whom I haven’t seen for ages which is so nice. In fact I’m meeting a friend and her son tomorrow. The boys can play and we can have a long catch-up which I’m really looking forward to. Every cloud and all that!!
On an end note – my home study area will almost be complete after 3 months of waiting! So the colour theme is orange and black. I received an email from www.made.com and my desk should be delivered very soon! I will definitely post some photos on here once it’s all done.
So one of my lovely friends Jigna has just launched her company website. She is a professionally trained hair and make-up artist based in London. Jigna has trained with Airbase UK - the countries leading airbrush make-up company. She has also worked on photo shoots for Vanity magazine. She uses leading brands such as MAC, Airbase, Illamasqua, Dior and Kryolan.
Please check out her website by clicking on the following link: http://www.jignapatel.com
A couple of ladies from work bought me this tshirt; as soon as they saw it, they thought of me. It reads “I’m kind of a big deal on my blog.” I love it.
And my little monkey in the background xxx
Since I have been diagnosed with MS my life has changed so much. Currently one of my main prioritisations is to be organised.
My life has become dependent on apps on my phone, reminders and the post-it note.
I have started leaving lists around the house – in the kitchen if I think of anything whilst I’m cooking, in the bedroom on my bedside table, bathroom - everywhere. I am turning our 3rd floor landing into my new study area at home. I plan to have lots of post it notes and lists around there too!
Since being diagnosed with Relapsing Remitting MS almost one year ago; the lists have become increasingly important.
Even at work – I have post it notes everywhere and lots of reminders in my Outlook Calendar!
You may ask- ‘Why write the lists?’ – By writing lists - it helps me to collect my thoughts. I used to be able to remember everything and now it’s not like that at all.
Lately my memory has been terrible. I think a factor is due to fatigue. When you’re so fatigued you can hardly drag yourself off the sofa and into bed; the last thing you’re able to do is remember that you have a Doctor’s appointment or your son’s first Parents Evening at Nursery!
Also when I’m fatigued my brain tends to swing from having thoughts whizzing around it like a pinball machine to having them drop out of my head every time I move. I can have a conversation with my husband and within 5 minutes I have forgotten what I’ve said. Lists keep everything clear and my thoughts more manageable.
Lists also help me to prioritise. When I’m fatigued I know that I have to get the most important things out of the way first.
I need to avoid complete brain fog when I do things; by highlighting the top-priority tasks, I can better see how to do this, as well as plan and allocate my time efficiently.
Finally, list-making helps me to feel a sense of achievement. After a long day at work, coming home, seeing to Nico (with the much appreciated help of my lovely hubby), sometimes cooking, showering – I am shattered. It’s not hard to forget things as I am so fatigued and in pain. By having my lists, it’s important that I feel that I have managed to achieve something and cross it off one of my many lists!
I now have 10 weeks left until my run; that is 70 days!
I am currently on week 2 of my training, even though I started 3 weeks ago! Basically I had a little setback last week. As my body isn’t used to exercising as much, every time I have done a run on the treadmill, I have been experiencing a flare up of symptoms. It got pretty bad last week so I couldn’t train. I had to take 3 days off work to rest as the head and face spasms were unbearable.
After resting last week, I ran for 15 minutes on Monday night. I know I need to take things slow and not push myself too much.
As I was running the other night it really hit me and I realised exactly what I’ve signed up for! I don’t think I realised how much my body can take. By the time I finished my 15 minute run it felt like rodents were running around inside my body. My arm started spasming as well as my leg.
On Wednesday night I ran 1 mile; 1 mile you say to yourself – is that it!? Well it took me 20 minutes to do just the 1 mile. I wasn’t out of breath but I don’t want to push myself too soon.
I’m planning on doing another mile tonight, maybe more – I’ll see.
I remember before I was fit and healthy, prior to my MS Diagnosis and any symptoms, I ran 3miles with 35 minutes.
I am so very lucky as I’ve been getting so much support from friends and family. I will have my entourage with me on the day of the race. My lovely sister in-law Bini is coming up from Gloucester. My cousin Shil has told me he will run by my side and get me to that finish line. A few other cousins are considering running. My husband Anish, son Nico, my mum will be cheering me on along with some other cousins and friends. I’m a lucky lady!
I’d also like to thank everyone again for their generous donations! I have reached my target of £1000 and now on £1348. Keep them coming in everyone!!! :-)
I will post some photos of me training shortly!!
So over the past couple of weeks I have started training for my race in August. I knew it would be hard work but it was definitely a shock to the system.
I think because my body isn’t used to running, it’s taking it’s time to adjust! Once I finish running on the treadmill I start to feel my legs and spine tingle and burn. I keep telling myself the more I run, the more my body will adjust accordingly.
I now have 12 weeks left until my run.
I have been absolutely overwhelmed with all the kind donations people are leaving on my JustGiving page. I have already reached my target and more donations are pouring in. This motivates me even more to train and get myself fit for the race.
I’ve been noticing a few new areas being affected with MS Symptoms. I’ve been experiencing spasms on the right side of my face as well as my right arm. Both feet constantly have tingling going on; as well as all the original symptoms. It just feels like its flaring up everywhere. I’ve informed my MS Nurse so I’ll see what she says.
I personally don’t think there is much that can be done. I just need to accept it and carry on.
Another thing which has been very frustrating for me recently is trying to accept that I can’t do what I use to be able to do.
For example, the weekend just gone, on Saturday morning we went to visit a couple of our friends who just had new additions to their families, after that we went food shopping. Came home and then cooked for the evening as we had family over to watch the big fight. I was so drained that I had fallen asleep on the sofa at 20:30 and went up to bed. 20:30 on a Saturday Night!
My husband managed to do all the gardening and cleaned the whole house during the day. Then he entertained our guests and cleared up whilst I was asleep.
My mind tells me it wants to do more, but my body physically cannot and it is ever so frustrating.